When Addyn was only a few months old, her mom Elise noticed something was wrong. After undergoing testing, Addyn was diagnosed with HLH (hemophagocytic lymphohistioctosis), a life threatening immunodeficiency.
After getting this scary news, Elise and Addyn made the 250 mile drive from Las Vegas, NV to Orange, CA so that Addyn could receive the treatment she needed. Although it isn't a cancer, HLH is often treated with chemotherapy and eventually, a bone marrow transplant (BMT).
Watching her daughter go through chemotherapy and the associated side effects was scary for Elise, but it was necessary so that Addyn could have the BMT. Once she had the transplant, Addyn and Elise moved into the BMT room at the Orange County Ronald McDonald House. The BMT room is designed specifically for immunosuppressed patients, and features a kitchen, dining area, television, and hardwood floors in addition to the normal room amenities.
Addyn and Elise stayed in the BMT room for over 90 days while Addyn was recovering. She didn't leave the room unless she was in a stroller covered in plastic to protect her for exposure to anything that might compromise her fragile immune system. Elise and Addyn still come to the Orange County Ronald McDonald House every few months when Addyn has appointments. Addyn recently celebrated her second birthday.
Click here to make a donation in Addyn's honor.